Yes, FTD is Dementia

FTD – I have Frontotemporal Degeneration which is a form of dementia. It is NOT Alzheimers. Not as well known, but just as fatal. This is my story.

Starting again

I wrote a blog about my adventures of me having Fronto Temporal Degeneration (FTD)and my husband having Alzheimer’s. Whoever said “Life is but a bowl of cherries” must have had very sour cherries! I am now a widow with FTD, but even more determined to live the best life I can.

I was diagnosed approximately ten years ago with the Behavioral Variant of FTD. I am not going to give you all the gory details of fighting to get an accurate diagnosis. Just know that it is not easy to find, even neurologists, who have experience with FTD. I was lucky, I was diagnosed in under five years and our family practice physician took the time to learn about it.

I will leave it at that. The other problem with FTD is that very few people have heard of it and, at that time, very few physicians were even aware of its existence. My husband and daughter and a couple other friends and family took time to learn about it and speak with my doctors.

I used to write a blog, FTDnoflowers.blogspot.com but most of the information is outdated. That is the encouraging thing about FTD, there is finally a lot of research occurring. If you want more of the story of FTD itself, I suggest you visit http://www.theaftd.org for all the current info.

I still, currently am still active with the AFTD and serve on their advisory council for those with FTD. After my husband’s death from Alzheimer’s, I moved south and am living with my daughter. I recognize that I, as well as many with FTD, am difficult to live with. Very difficult! But we work it out.

A few days ago, I posted what was to be a blog entry of my Facebook page. I received many suggestions that I start blogging again. So, here I am. I will stop with this introduction for today.

Tomorrow, when my brain is fresh, I will try to cut and paste the post that caused the renewed interest in my blog. FTD does not always cooperate. One day I can do something and, the next, not be able to.

Thanks for reading!

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